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Expand Your Network of Companions

Strategies for Expanding Your Network: Insights shared by Lesley Errington of Kiama Support Group. First in a series of advice from heads of different Groups within the state. Location: A relaxing and impartial venue, complete with refreshments. Relaxed atmosphere: Inviting. We commence with a...

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Strategies for Expanding Your Network of Supporters
Strategies for Expanding Your Network of Supporters

Expand Your Network of Companions

Growing Your Parkinson's Support Group: A Friendly How-To Guide

Ever wondered how to grow a thriving support group for those battling Parkinson's? Lesley Errington, a leader from the Kiama Support Group, spills the beans, kickstarting a series of expert tips from group leaders statewide. Here's a sneak peek:

The Venue and Vibes:Pick a comfy, neutral spot that offers grub and drinks. Make sure it's a welcoming hub, fostering casual chats and new connections before diving into the nitty-gritty.

Not-So-Formal Meeting:Kick things off in the club coffeehouse. Established members invite newcomers to join smaller chat groups, putting everyone at ease. Following this,switch to a large, quiet room for the meeting itself, filled with fun activities, knowledgeable discussions, and even some old-school rock sing-a-longs, all amplified for better hearing (and singing, why not?).

Advertising:Hand out a brochure, lodge it in pharmacies, libraries, doctors' offices, and physio rooms. Although the local paper hasn't been too supportive, press coverage is the best outreach tactic.

Special Meetings:Organize an annual summit with a Sydney neurologist — a surefire draw for newbies. Spread the event using the same channels as regular meetings.

Stay Connected:E-mail or call folks who've missed a few meetings or are new to the group. A small token of interest goes a long way in fostering a tight-knit community.

Bequests and Gifts:Don't forget about the power of a well-planned will — a bequest or gift to a charity or individual of your choice can support daily... Ahem, Frolic through the finer points of Parkinson's disease care another time.

Tips for Tackling Makeup Woes:Struggling with applying makeup because of Parkinson's tremors? Here's a helpful guide.

Exercise, Education, and Connecting Online:Parkinson's NSW recently unveiled Module 3 of its online education series, focusing on exercise. Check it out for insights into exercise benefits and effective exercises for Parkinson's patients.

Facebook and Newsletters:Emailed, hand-delivered, or posted newsletters serve as great additional resources, complemented by the group's Facebook page which has garnered some new members.

Strategize and Set Goals

  1. Evaluate local needs and challenges.
  2. Define group's mission and goals.

Recruit a Powerhouse Team

  1. Assemble passionate leaders.
  2. Delegate roles for smooth operations.

Build a Comfortable and Inclusive Environment

  1. Secure an accessible venue.
  2. Encourage open discussions and mutual respect.

Design Engaging Programs

  1. Offer educational content, focusing on disease management, exercise, nutrition, and coping strategies.
  2. Incorporate physical therapist-led exercises to improve mobility and balance[3].
  3. Plan social events to overcome isolation and promote camaraderie[4].

Promote Your Group

  1. Reach out to healthcare providers, community centers, and social media platforms.
  2. Collaborate with organizations like the Michael J. Fox Foundation or local Parkinson's associations for resources and support[2][5].

Adapt and Improve

  1. Seek feedback from members to understand their needs and tailor offerings.
  2. Be willing to adapt programs based on feedback and emerging needs.

By following these steps and being chipper and hopeful, you'll build a robust and supportive Parkinson's community that addresses the unique challenges faced by its members.

[1] https://www.parkinsonsnsw.org.au/growing-your-support-group/[2] https://www.michaeljfox.org/[3] https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2993039/[4] https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3146668/[5] https://www.bpda.org.au/

  1. As part of the support group's program design, consider incorporating discussions on the intersection of science and mental health to enhance participants' overall health-and-wellness.
  2. To foster a holistic lifestyle for members, consider organizing workshops or inviting speakers to discuss topics such as mindfulness, stress management, and maintaining a balanced diet, in addition to Parkinson's disease management.

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